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Showing posts with label IVF doctors. Show all posts
Showing posts with label IVF doctors. Show all posts

Tuesday, April 2, 2013

What infertile couples go through when undergoing IVF ?




This is an e-mail which I received from one of my virtual friend. I had tears when I finished reading it. She has penned very beautifully what she went through during her IVF journey. This letter will be very useful for other patients, and for IVF doctors as well. Many more women should come forward to share what they go through during the IVF process. I wish San a very beautiful life ahead and may all her wishes come true !

Hi, 

I never share what I feel throughout my ivf journey with anyone. It’s very difficult to express in words...But my experience is not that long and terrific like others. When I read other women experience on Ivf forums, I feel mine is nothing. But the impact of this short learning period is much deeper in my heart. I thought after marriage everybody gets pregnant easily. I never saw a couple struggling for baby at my native place. Never heard of this word IVF...I was completely unknown about these infertility treatments. But six months after marriage I feel that I need a baby. I was thinking why not happening .Started reading on internet how to get pregnant fast J... Waited for one year. As I am 29 and habby is 36 year old. So I convinced my hubby for regular basic check up. He was not ready for that. I had done ultrasound scan for first time in my life.I felt so awkward .Dr told me that there was a uterine polyp of 1cm.and ovary seems polycystic. I asked my dr. Is this a reason for not getting pregnant? She said not sure...But it has to be removed. My hubby’s SA test was scheduled but he thought first we will do this procedure ...I think we should have been taken opinion of other doctors also. But my hubby was not involved in this process. I went alone for scan also. He thought that I should wait for a year or so. Polyp had been removed successfully .My mother was with me that time and She was shocked, we also.

Then our doctor told us to try for a baby soon after the procedure then she added it might take one and half year.We tried but unsuccessful .Then I forced my hubby for SA test. His report was also not great. Low motility, morphology .Only 16 million counts. In that abnormal count is more. She said it is sufficient for pregnancy but It will take time.Conceiveing naturally with this count is little difficult. She gave lots of medicine to both of us. But after few months we visited her again.That time she suggested us IUI with injection and medicines. Before IUI procedure we found in SA test that my DH’s count was 13 million only after taking so much of vitamin tablet. From that moment my DH skipped all the medicine. That was fine for me.

 Her clinic was ok but she didn’t have that proper OT table for procedure. Overall procedure was very uncomfortable and painful for me .That was a first failed IUI cycle. After that we took a 4 months gap. My husband promised me that he will maintained good and healthy lifestyle to improve sperm quality...after reading on internet that some women got positive result in their second or third try of iui I decided to go for second try. Before taking a meds I confirmed twice from DR that my DH count was sufficient for iui. Her answer was yes. But just after the procedure she said that quality and quantity is not good enough for iui .Then she gave SA report to me. I saw value in that report was same which mentioned in previous report. I didn’t understand if she knew it before the procedure that this much count was not sufficient then why she made us to spent 20 k for it. It was also failed cycle. Then I was telling my hubby that we should change our doctor. I searched on internet But I didn’t find any good doctor in Bangalore...Every Dr. Profile had bad review. I was so confused. My DH was not with me in this search operation.He told me whatever u decides I will do it.

My hubby thinks now also that all are fake reports or lack of valid theory and there is no problem in his count. He thinks something is wrong with my uterus acceptance.And whenever I showed our report to any doctor in Bangalore .They said that there is problem in my hubby’s count. I can be pregnant but not sure .But I don’t want to listen about the problem that he has I want solution because I love him I want a baby from him.

Because of all this I quit my job I thought work pressure was not good in a conceiving stage .I was working with Animation Company in Bangalore...Mine was love marriage but it was arranged by our family .They are not happy from us. We thought everything will be fine when we will have a baby but after this infertility struggle for 4 years without anybody’s support I was so frustrated and I started blaming myself and my hubby. I told him so many times that because of him I am facing this trouble and we married without our parents’ wish that’s because their blessing was not with us. But after talking like this with him I felt bad all the time...He loves me so much  that he never complained about my behaviour and listened silently all my crap words. 

After a year we decided to go for an ivf .My hubby supported me in this decision because it was our last option and Doctor was same because my hubby thought that she knew my previous medical history. She established her new clinic very well. When I visited her for first scan she told me that she brought new machine for scan and that detected blood flow towards uterus is very minimal in my case. With her new machine this sentence was also new for me. I was shocked. She told me to do lots of test. She did HSG test (without anaesthesia) and that was unbearable for me .But good news was my both tubes were open.  I read about test meaning on internet. After investigating so much about ivf on net I found that there was some unnecessary test (TB test of uterus that cost 3k).When I asked her about it in my next visit she scolded me literally that Reading on net can cause stress and it reduced chances of getting pregnant. My hubby also thought the same. He supported her thinking and told me to stop reading in front of her. I was quite. She gave so much meds and told us that we had 60 to 70 % chances of conceiving via ivf as my optimal fertility rate and my egg quality was very good. But she was not talking about blood flow towards uterus. In second scan she told me everything is good.  I asked her” how is my uterine blood flow?” She said there is nothing which can cause any problem in pregnancy” and she added stop reading on net and told my hubby to disconnect net connection...Her behaviour was strange. But I was collecting information because all these things and terms were new for me. I should know everything. But my hubby had a faith that she was a brilliant dr. and I should not question her. As she completed her study from London and she had an experience of ivf in Australia.

I was person who scared of injections .I avoided injection so many times in my life .But this time I was happily ready for it. She gave minimal dose of meds because my body is sensitive .That was not minimal for me daily three injection in tummy and that was so painful. After a few days she told me that there was a concern of hyper stimulation in my case because my body was over reacting with minimal meds. She collected 16 eggs and out of that 12 fertilised...embryo quality was also very good (grade A). She was decided to transfer one embryo in same cycle. But we wanted to transfer two to increase the chances. She was not ready for that, but I forced her. After the transfer I was on complete bed rest as she recommended at least for one week. I was so positive and happy in those two weeks. But after two weeks I got negative resultL. I was shocked and angry also. After taking so much medicines, blood tests and scans how it is possible. On the same day 6 ET was done, out of that no one got positive result. Staff told me this. I thought there was something wrong from doctor’s end.  Dr. told me I had a beautiful 6 frozen embryos so try next time. She didn’t have any sad feeling for me. I cried for 4 days. My habby was also upset. But I realised he felt bad because he spent more than 2lakh and got nothing. 

After a month of gap DR planned for FET. On the ET day we were waiting for our turn. Nobody was informing us what happened. Why she was taking so much time to transfer. She kept us waiting for 5 hours. She said embryos were not enlarging properly...She was not telling the truth. She told us to come on next day. In this treatment I knew timing was very important. I didn’t understand why she kept those embryos for one night. . I knew that vitrification process takes close to 45 minutes to enlarge. She told me on next day that I lost my two embryos while thawing. When we inquired her staff about her embryologist we got to know that she was on leave. My dr’s husband was a specialist in allergy who thawed my embryos. He was very rude person. He was in charge of medical and embryology department. I was aware of thawing process. Out of ten embryos one might not survive in the thawing process .but two 5 day grade A embryo we lost. We were so angry that time .why didn’t she appointed any other embryologist. When we asked her she said,”it’s a very easy process anybody can do this”. My husband scolded on her .He shouted on other staff also. It was so Irritating and frustrating moment for us. But we controlled our anger because our rest 4 embryos were in that clinic.

Next day I went alone for transfer because my husband was very angry and I didn’t want any more quarrels in clinic. This time she was angry she called me in her cabin and said, “I will pack your embryos, take it and get your transfer done in any other clinic”. I managed that situation anyhow and convinced her for transfer. I was so disappointed I literally cried in front of her. She promised me that if this cycle failed she will give me free ivf cycle because she had soft corner for me. I think that’s because my face looks innocent. This time she transferred two embryos.That ended up in a negative result after so much drama.

We lost faith from this treatment. I told to Doctor that for my last two embryo transfer I was not going to do any blood test this time. After 2 to 3 scan, very less medicine, no blood test and she was ready to transfer 2 embryos. On the day of ET when I asked about the embryo quality she said one was good but other was small. But while telling this she was not looking at me. She was lying. Because I was on OT table for 20 minutes before transfer and she was observing the embryos with her husband. I was able to see her from OT table. I thought again she did something wrong and hiding it from me. At the time of transfer I could see only one embryo on that screen clearly. She didn’t take money from us. That cycle also failed.

But this time I didn’t cry. When I told her about my negative result she sms me that she will give one free ivf cycle. I didn’t reply to that massage.

I am looking for new job now. While searching something I saw your blog. I read all the articles. As I am an artist I am little sensitive. I cried. Most of your feeling and thoughts are just like mine. I also love cats. I have three cats at my hometown. After reading your blog I feel guilty about my husband. I tortured him. I insulted him so many times .Because of me he kept himself away from his parents for one year. We haven’t seen my sister in laws’ 2 year baby. We missed all family functions purposely. He scarifies a lot of things. Already he suffered a lot in life. He has three sisters he arranged their marriages and their baby’s first birthdays also. He has so much bank loan. He hasn’t done anything for himself. We leave in rented apartment .I don’t want to trouble him now. He is fond of cars. So instead of wasting money on this I allow him to buy brand new car. His happiness while driving a car is more important than my baby desire. I don’t want to compare happiness with baby from now. I will live each day happily. 

Your blog changed my mind completely. When I share my feeling about life and baby with my husband .I can see happiness in his eyes. Because he wants to see me happy. One thing I like about you that your mother understands you. You can share your feelings with her. But in my case I can’t share anything with her...whenever she called me before asking about me she asks about my period and every time she tells me a new name of women who recently got pregnant. 

Thanks,
San.

Monday, July 30, 2012

An Indian woman's IVF experience and how to make the ART field in India better?


This is a guest post from NP who has gone through IVF treatment in India. With her wonderful e-mails and compassion she has become my good friend too! In this post she has shared with us her IVF journey and I am sure it will help many people going through infertility struggle to become more positive and  better person as a whole. This post is a result of hard-earned wisdom. People who undergo infertility treatments do have a lot to learn from this. Thank you very much NP for sharing it with us. We wish you lots of good luck and may all your dreams come true!



The term ‘infertile’ was coined by doctors and thrown on us. In the beginning I and my husband were in denial mode.  He couldn't accept that there was a problem with him and gynaecologists said that I am fine. It took me 3 years to make him understand that indeed there is a problem with him after educating myself about our problems from internet. Yes, the doctors were of no use! They gave me least information and wasted my precious time. After lots of conversations between us, my DH agreed for trying IUI; but it failed and we were told to go for IVF treatment because of poor sperm count and morphology. IVF is an invasive procedure and my DH refused to take that route. He was afraid that there would be a negative effect on the child born via IVF. Because of his conservative view he didn't like this kind of baby making. Again so many months went wasted. I was learning about the IVF treatment; reading; trying to be happy in front of him yet persuading him to visit doctors. Finally, he agreed and when we started our IVF journey, I was 33 years old. I always knew time is precious in infertility treatment and it is passing by. When my first IVF cycle started, the doctor gave us shocking news just a day before the egg retrieval, ‘NP, you just have 4 eggs and they are all luteinized, we will abandon this cycle but we will do the necessary tests for you.’ I am wondering within myself, luteinized? What is that? During the IVF process every time a new terminology cropped out and like kids we have to learn many new things! The test results came back and I was found to have low AMH-1.8 ng/ml. The doctor on seeing my AMH results advised me to take up the donor egg route. What's that? I asked her. What rubbish are you talking doctor? She said excitedly ‘Oh! Don’t worry, I can get u beautiful models, intellectuals, bollywood heroines, young girls with healthy eggs, beauty with brains with similar DNA profile as yours’. In my heart, I cried; in my mind I asked myself, ‘what is all this nonsense’? Am I looking forward to have a child or am I selecting a vegetable from market? Isn’t love the necessary ingredient in baby making? This lead to the discovery that; here in Delhi, donor eggs, donor sperms, surrogacy is a huge market. People sell them for monetary gains. As I used to wait for doctors at the clinics, I could figure out touts, surrogate women, egg donors, customers etc. I never ever thought that infertility could be marketed in such a big way. It shattered my soul beyond my imagination. Is it so difficult to get the basic requirement of a living being? You said it right Manju, people do not even understand the words when they give us suggestion of donor egg or adoption. My heart would sink seeing children abandoned or my friends aborting their babies because they don't want a second child. My God! It was my dream to have 3 kids of my own ever since I was a small child. Being the eldest in the family my kid brothers was born in 1 year and 3 years gap and I had been like a mother to them ever since I was five myself! I took care of my relatives and neighbours children all when I was a kid myself.


Well, Then I went to another doctor. ‘You search and I will come along with you’ were the words of my DH. I searched and searched. We went to Mumbai to visit our relatives and luckily I found myself at Dr. X’s clinic. ‘She is the best’, I was told. I thought to have her opinion too. She scanned my ovaries and said ‘your left ovary is too small; you do have poor ovarian reserve’. You can try ICSI but the best option would be donor eggs’. I asked her ‘What are the chances of success and the cost?’ I was told that my chances are 10% and the cost of ICSI is 2.5 lakhs. It's an absurd amount with such low chance of success and the necessity to stay in an alien city also added to the stress. So I searched in internet again for clinics in Delhi.  This time we did another ICSI cycle using ‘long protocol’. They retrieved 6 eggs, 5 fertilized and all are 4 cell grade B two days after ER.  I was ok with the doctor but I did not like the junior doctors and the environment. The clinic was swarmed by Afghanis and there was complete chaos. I regretted my decision but I was in the middle of the cycle. I did not conceive : (. I was alone when the reports came. I went to see the doctor. I waited from 11 AM untill 6 PM holding my tears and fighting with my emotions. I was getting angry at her because of the lack of time management. When she came, she simply told me to go for donor eggs. I asked her ‘why did it fail, you said embryo quality was fine. She replied that it is because your uterus did not accept the embryo or because of your DH’s sperm which has poor morphology. I never went back to her. I read the information on Dr. Malpani's website and all his blog posts. They gave me a clear understanding of ART field. Coincidentally, whatever happens with me during my IVF cycle, he would write a blog post about it in a few days. So when she said poor morphology was the reason, I knew she thinks I am a fool! I know that sperm’s function is just to fertilize the egg and even sperms with poor morphology can create beautiful babies.

So, I started my IVF again in Bourn Hall Clinic, Gurgaon. The clinic in Gurgaon is a UK based one run by the IVF pioneer who created the first test tube baby.  Though the doctors are Indians they are trained by UK doctors.  I was impressed by their professional attitude and by the stringent rules with which they maintain their laboratories. This time I had antagonist protocol (this July) but the cycle was abandoned due to fewer (only 4) follicles and they were less than 10mm despite a dose of 450 IU Gonal F for 7 days. On seeing my ovaries response to gonadotrophins the doctor is not hopeful. But I am. If I see my entire journey in a broader prospect, I have not lost anything. Money yes, time yes, mental piece yes, relationships yes but nt my fighting spirit. I am a fighter and I can fight against the odds. I will accept it if I cannot have kids of my own in the end, but I am not lost as an individual. I have many aspirations, dreams to fulfil. I lost my smile, my friendly nature, my creative side for a few years now but I am bouncing back with double the energy. I keep meeting wonderful people from all over the world, different age, different struggles but they are all living happily, helping others. This inspired me to LIVE TODAY.

 Now, I am back to my walking schedule which I love, yoga is my passion and I am keen to take up dancing classes, learn driving, interacting with new people from all quarters of life and help many others who are struggling with infertility. I am becoming a better person!

NP’s experience in the field of IVF is an eye-opener for everyone who is going through this process. I am very happy that NP came forward to share with us her journey. I appreciate her good-will and courage. When I read NP’s journey again and again; I note several important points and questions which every couple undergoing infertility treatment should be aware of. I will make a short summary of it:

1)  Indian men (might be males all over the world!) are very reluctant to accept the fact that they can be infertile too. They even refuse to undergo fertility tests! The scientific truth is males account for 40% of infertility issues and females 40%. A combination of both partners may account for 10%, and the other 10% of infertility cases are from unknown origins.
2)  When a man takes long time to come to term with his infertility, he is also indirectly wasting his partner’s precious fertile period by postponing the infertility treatment.  In the field of infertility, the age of women matters the most. Woman’s fertility start to decline rapidly after the age of 35 and by the time a man accepts the fact that he needs fertility treatment to father a child, the woman’s fertility can also be compromised. As a result of this they have to suffer a double whammy - sperm issues + the egg quality issues. This can make the fertility treatment futile and can also destroy your chance of adopting a baby too (The combined age of both the partners should be less than 90 for being eligible to adopt a baby!). Time is too precious as far as infertility is concerned; try not to waste it because of your ego and ignorance!
3)  When you are an infertile partner in a relationship please learn to give proper respect to the rights of your fertile partner. Be open to the treatment options available. This will give a chance for you and your fertile partner to procreate! If you are not open to treatment options you are curbing the basic right of your fertile partner too!

Now some questions to ponder!

4)  Why are many IVF doctors insensitive to human emotions? When a doctor gives a talk about donor egg isn't his or her responsibility to be empathetic and compassionate? Should doctors behave just like a business man or woman? Why is the moral and ethical value associated with doctor profession completely lost?
5)  Why is IVF so expensive? Should money determine the availability of a scientific invention? As patients, what is our responsibility in bringing down the cost of IVF? Should we just be passive and believe foolishly what we are preached by the doctors? Why are IVF rates so variable? Shouldn't there be a fixed price for ART treatment?
6) What can we do to fellow infertile couple who are unable to afford costly infertility treatment? Should we just leave everything to God and foolishly believe the philosophy that having a child is only in God’s hand?
7)   How can we believe the success rates advertised by Indian IVF clinics? What is the proof? Why don’t we have a committee to regulate IVF/ICSI cycles performed in India? Don’t we need a central registry where every infertility clinics ART cycles are recorded and their success rates evaluated? The information thus collected should be freely available to public use. It should be made mandatory for every patient to report their cycle details to the central IVF registry. Who will make that happen?
8)  Why don’t Indian newspapers and magazines write about these problems which are haunting the field of ART in India? Why do they focus only about the emotional and social issues associated with IVF treatment? Who will write about dishonest IVF doctors who just work for the huge amount of money they earn?
9)  Why don’t insurance companies in India fund infertility treatment? Why don’t infertile couples who undergo so much emotional torture and financial problem fight for their rights?
10) Why Indian patients are so reluctant and lazy to learn about the scientific details of the most important and costly process they undergo? Why they allow themselves to get tormented and cheated?

I want every infertile couple who read this come forward and share their ART (IVF/ICSI) experience. Please, make the world know what you are going through! This will help fellow infertile couples to have a better treatment in the future. I wish everyone should make their voice hear by some means - it can be a blog, a newspaper or whatever media is available! If you have a blog please let me know!

If someone who has undergone IVF/ICSI in India is reading this post please share your experience with me (actually with us!). If you want to be anonymous I am perfectly OK with it. My e-mail ID is manjupadmasekar@yahoo.com. Write to me so that you can speak about your experience through my blog. People who want to submit  reviews about Indian IVF doctors are also most welcome to do it; be frank and be honest when you write a review!

Little drops of water make the mighty ocean! Let us do our best to make the field of ART a better place for Indian infertile couples!

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